
Location
Pennsylvania (150-154, 172-196)
Infusion Product
Prolastin-C
Contact
844-367-2456
rcolvin@alphanet.org
Hi, my name is Rob Colvin and I would like to introduce myself as your AlphaNet Coordinator.
I live in Cicero, New York with my wife and daughter. Currently, I am on the Cross-Country staff at Onondaga Community College. I was diagnosed with Alpha-1 antitrypsin deficiency in 2023. It wasn’t until I was 50 years old that I started experiencing a decline in my breathing. I thought this was just an age thing. I was once an All-American Cross-Country runner in my youth. After some serious self-reflection, I brought this concern to my doctor, who ran a few tests and a CAT scan. The bloodwork confirmed that I had Alpha-1 antitrypsin deficiency.
I love serving other Alphas and find that it brings me great joy. We all feel vulnerable and unsure of the unexpected, but we know that knowledge is power. Remember, we are here to get you the information you need or just to listen. If you find an occasion in which you wish to talk, please give me a call. We are Alphas Serving Alphas.